I’ve Joined the Movement. Will You Join My Cabin?

I’m supporting the periodic paralysis community, will you help me?

Hi all,

I’m reaching out because I’m participating in Every Move Matters, a virtual summer‑camp‑style weekend supporting the Periodic Paralysis Association.

[Optional Add‑On: Personal Story] “I’m doing this because periodic paralysis has touched my life in a personal way…”

This event brings together people living with periodic paralysis and related skeletal muscle channelopathies; conditions that are rare, often misunderstood, and frequently misdiagnosed. Many people spend years navigating uncertainty, isolation, and limited access to knowledgeable care.

I wanted to do something that makes a real difference, so I created a fundraiser to support the PPA’s work. Your donation helps fund educational materials, clinician outreach, patient resources, community programs, and advocacy efforts that improve diagnosis, care, and quality of life for people living with these conditions.

For my part, I’ve committed to [[insert your movement goal]] , because in this community, there is no wrong way to move. Whether it’s stretching, rolling, dancing, creating art, or simply showing up, every action reflects light into our community.

Check out my fundraising page and please consider making a donation to help me reach my goal of [Your Fundraiser's Goal Will Automatically Go Here].

Give today.

Giving online is easy and fast, and your support will make a real difference. I appreciate your help!

[Your Fundraiser's Name Will Automatically Go Here!]

I’ve picked my cabin and set my movement goal! Now it’s time to kick off my Every Move Matters fundraiser! This virtual summer‑camp‑style weekend supports the periodic paralysis community through education, outreach, and connection. If you’d like to support my fundraiser, here’s my page:[[Fundraiser Link]] Thanks for helping me keep the momentum going.

Thanks for joining my cabin with your generosity

Hi [Donor Name],

Thank you so much for your generous donation to my Every Move Matters fundraiser for the Periodic Paralysis Association. Your support helps build a world where people with periodic paralysis are accurately diagnosed, effectively treated, fully supported, and never isolated, and where research leads to better therapies and, ultimately, a cure.

Because of you, we’re able to strengthen educational materials, clinician outreach, and patient resource programs that directly improve diagnosis, care, and quality of life for individuals and families affected by rare skeletal muscle channelopathies. You’re not only helping me reach my fundraising goal, you’re making a real difference for this community.

I’m proud to have you on my team. I’ll keep you posted on my progress, and I encourage you to check out the Periodic Paralysis Association to learn more about the work you’re supporting.

Thank you again for your generosity!

[Your Fundraiser's Name Will Automatically Go Here]

Thank you to everyone who has supported my Every Move Matters movement goal! Your generosity helps the periodic paralysis community stay connected, supported, and seen.