Every Move Matters

Become a Camper

Every Move Matters is our community‑powered movement, fundraising campaign, and virtual camp supporting individuals and families affected by periodic paralysis and related skeletal muscle channelopathies. Your participation fuels the programs that improve diagnosis, care, and quality of life for people living with these rare neuromuscular conditions.

Why Your Participation Matters

Periodic paralysis is rare, often misunderstood, and frequently misdiagnosed. Many people spend years searching for answers, support, and clinicians who understand their condition. Your fundraising helps us:

• Create new educational materials for patients and families
• Expand clinician outreach and training
• Grow patient resource programs
• Strengthen community support and connection
• Advance research partnerships and data‑driven initiatives

Every dollar you raise directly supports these efforts.

How You Can Help

We’re inviting dedicated supporters to rally their friends, families, and networks to join the movement. Becoming a fundraiser is simple — and you’ll make a meaningful difference for people living with periodic paralysis.

When you create a personal fundraising page, you help us move closer to a world where people with periodic paralysis are:

• Accurately diagnosed
• Effectively treated
• Fully supported
• Never isolated

And where research leads to better therapies — and ultimately, a cure.

Choose Your Cabin Challenge

You can join the movement in the way that fits your energy, your goals, and your fundraising style:

• Camper — Make a one‑time gift and set a personal movement goal.
• Cabin Captain — Lead a peer‑to‑peer fundraising effort and rally your network.
• Cabin All Star — Fundraise and secure recurring gifts that fuel long‑term impact.

These Tiers keep the experience flexible and accessible while gibing you a clear path to make a difference.

Getting Started Is Easy

We’ll give you everything you need:

• A customizable fundraising page
• Sample messages and graphics
• Tips for sharing your story
• Support from the PPA team

You choose your movement goal, share your page, and invite others to join you. Every pledge and every share helps amplify our mission.

Join Us

Create your fundraiser today and help power the future of education, support, and research for the periodic paralysis community.

Whether you run, walk, stretch, roll or create, EVERY MOVE MATTERS, and your leadership matters even more.